Monthly Archives: June 2016

NDIS Planning: Autism Spectrum Features in Smith-Magenis Syndrome

The NDIS has published the current demographic information of approved NDIS participants in Australia, and the breakdown by disability area (http://www.ndis.gov.au/part3-participant-1). Participants with Autism and related disorders represent the highest proportion of approved plans overall, at just over 30% nationally. With Autism Spectrum Disorder (ASD) being highly funded by the NDIS, the relevance of ASD…
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NDIS Planning: Violence in children with an intellectual disability

As the NDIS rolls out more nationally over the next couple of years, it is helpful for families to leverage resources and documentation that can help them in the planning process. In particular, articles that address some of the specific challenges that are characteristic of Smith-Magenis Syndrome (SMS), can be invaluable when applying for specific…
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Newcastle Herald 17 June 2016: Camp gives families time to connect

A great article in the Newcastle Herald featuring one of our local Australian families (and SMS Australia team member, Angela Matoka); elevating local awareness of both Smith-Magenis Syndrome and Camp Breakaway. Every two years, Camp Breakaway not only provides many of our families with much needed respite and interconnection but also supplies research updates and…
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