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Smith-Magenis Syndrome (SMS) is a rare and complex genetic condition that affects between 1 out of every 15,000 to 25,000 births. Caused by a deletion on the 17th chromosome, SMS is characterised by developmental delays, intellectual disabilities, sleep disturbances, and significant behavioural and adaptive challenges. These complexities make it crucial for families and individuals affected by SMS to have a strong support system and access to the latest research and resources.

Smith-Magenis Syndrome Australia (SMS Australia) is the national support network dedicated to making a meaningful impact in the lives of those affected by SMS. As a registered not-for-profit organisation, we were founded with a common goal: to support people diagnosed with SMS and their families, foster a strong sense of community, and promote broader awareness of SMS. Our work includes raising awareness, collaborating with specialists and educators, disseminating research and guidance, assisting families in navigating government services, and developing a robust network of families and support professionals. Additionally, we proudly facilitate and fund a biennial Australian SMS Camp, providing a unique opportunity for connection and support.

Your donation to SMS Australia will help us continue this vital work. Every contribution is tax deductible and enables us to raise awareness, support families, and drive connections that can improve the quality of life for those living with SMS.

Join us in our mission to build a stronger, more connected community and promote understanding and support for Smith-Magenis Syndrome. Together, we can make a difference.

DONATE TODAY!