SMS Resources

• View/Download: SMS Australia Factsheet

• What is SMS:  www.prisms.org/about-sms/what-is-sms

• An In-depth Review of SMS: www.ncbi.nlm.nih.gov/books/NBK1310

• SMS FAQs: www.prisms.org/about-sms/faq

• PRISMS Conference: www.prisms.org/education/sms-conference

• For the Parent/Caregiver: www.prisms.org/education/for-the-parent-caregiver

• For the Health Professional: www.prisms.org/education/for-the-healthcare-professional

• For the Educator: www.prisms.org/education/for-the-educator

• For the Sibling: www.prisms.org/education/for-the-sibling

• For the Individual with SMS: www.prisms.org/education/for-the-individual-with-sms

• Publications & Resources: www.prisms.org/education/publications-and-resources

• View/Download: SMS Australia Financial, Planning & Support Resources

• View/Download: SMS Australia "Wall of Wisdom" Tips & Tricks Resource

At the 2024 SMS Australia Camp, attendees were invited to build on the tips and tricks “What Works Wall” from the 2024 PRISMS conference, by contributing to our “Wisdom Wall” and sharing insights in our “Parents/Carers Tips & Tricks Roundtable” session.

We combined these inputs into a resource to help loved ones navigate their surroundings, participate in activities and enjoy life. These are meant to be helpful suggestions from family peers with lived experience and should not be considered fact-based research or medical advice. We ask you to please consult medical professionals or field experts before implementing any of these suggestions. ​​​​​​​​​​​

• A Community that Cares: www.prisms.org/about-sms/living-with-sms/a-community-that-cares

• Early Intervention: www.prisms.org/about-sms/living-with-sms/early-intervention

• Behaviour: www.prisms.org/about-sms/living-with-sms/behavior

• Sleep: www.prisms.org/about-sms/living-with-sms/sleep

• Speech & Language: www.prisms.org/about-sms/living-with-sms/speech-language

• Medical Management Guidelines (download): www.prisms.org/about-sms/living-with-sms/medical-management-guidelines

• Common Health & Wellbeing Recommendations in SMS (download): https://smsaustralia.sharepoint.com/:b:/g/ERRceUzGLa1HiH0d-75ehg0BfHYO0ViN42mgr2xaaflmTQ?e=VVYUdO

• Medication: www.prisms.org/about-sms/living-with-sms/medication

• Guardianship & Financial Planning (USA-centric): www.prisms.org/about-sms/living-with-sms/guardianship-financial-planning​

• SMS Research Symposium: www.prisms.org/research/sms-research-symposium

• International SMS Patient Registry: www.prisms.org/research/sms-patient-registry

• Active Research: www.prisms.org/research/active-research

• Research Publications: www.prisms.org/research/research-publications

• Australian Research: Are you a student of genetics or a genetic specialist interested in a research focus in Smith-Magenis Syndrome? If so, please contact us!

• PRISMS Awareness Toolbox: www.prisms.org/awareness/awareness-toolbox