How can I get involved?
We are always looking for dedicated volunteers to support our work in driving awareness, facilitating research, enabling social connections, and being our State Reps. Whether it’s helping us share important information, identifying new research opportunities, building connections within our community, or representing SMS families in your state, your contributions will make a real difference.
A powerful way to support families is by becoming a ‘parent buddy’—a key point of contact for families facing a new diagnosis in your city or region. Navigating an SMS diagnosis can be overwhelming, and having someone who understands can provide comfort, guidance, reassurance and connections to local resources and expertise.
Additionally, fundraising is essential to sustaining our vital work. From helping us spread awareness to organising community fundraisers, your efforts will allow us to continue supporting families, advocating for awareness, and running our biennial SMS Australia Camp & Conference, a cherished event that brings our community together.
Every contribution, big or small, helps strengthen our network of support. Join us today and be part of a passionate community making a real impact! Get involved, volunteer, and help us continue our mission of support, awareness, and connection. Contact us today!